PEOPLE WITH MULTIPLE SCLEROSIS? How is life...

[andjela m]

...like from you, how do you feel having this disease? If you or someone you know has MS, how is life like for you or that person from your or their prespective, what is it like living with this disease?

[thirsty mind]

My daughter has MS. Everyone experience is different. She just started on a new drug. We are hopeful.

[Tina K]

Both my uncles have MS. My older uncle was diagnosed over 20 years ago. He is in a wheelchair, cannot feed himself, walk at all, his legs are in a permanent fetal position. Now, my uncle who was diagnosed five years ago is a completely different story. Progress has been made and he's been on medication since diagnosis, and you really can't tell he has MS. So I think anyone who gets MS today has a really good chance. I feel so bad for my older uncle and wish he'd been diagnosed later.

[yoellis]

My father was diagnosed with MS about 10 years ago, and his symptoms have been getting progressively worse for the past 5 years. It would be a lie to say my father's life is as good as it would be if he didn't have MS. He is very limited in his movement, and is unable to do most of the things he once enjoyed. He was forced to retire, and is permanently confined to a scooter during the day and an imported hospital bed at night. However, though my father and my family have suffered greatly, we have been able to work through it, and are finally beginning to discover things that still "work" even though my dad is ill. We have made extensive changes to our home to accommodated my father's needs, but now it had become second nature to move things off the floor, or keep food in lower cabinets, so that my dad can easily move around the house. My father and I used to have a friendly but distant relationship, but we have both been given new perspectives on life because of his disease. Never before has his advice and encouragement meant so much to me.