Andie
09-12-2007, 11:04 AM
...what can we do now? My boyfriend has AML leukemia and has recently had his second relapse. He has had 2 bone marrow transplants. His last transplant was a year ago. we found out about the relapse 2 weeks ago and so he received a high dosage of out-patient chemotherapy and then shortly after started to get fevers and was admitted to the hosptital. He was fine for the first 2 days and then after that he started getting delerious and seeing things. they tested his neurological system but just found out that it is actually his cardiac system that is being affected.His heart is not pumping as fast as it should and now he is very short of breath and they also found water in his lungs. they said that there is nothing they can do to make his heart stronger and that it is very possible he could all of the sudden have heart failure unexpectedly. I am very concerned because i want to know why they are telling us that he will inevitably die.What is the best hospital to be treated for oncology/cardiologyAlso they claim that this heart issue could be from the chemotherapy or could be from an infection and that they dont know. they said they are gonna wait till tomorrow to even have a cardiac doctor look at him.... shouldnt that be done immediately?? If he dies of the heart issue will that be considered malpractice? I am concerned because i love my boyfriend and want him to be in the best hands. i dont care how far away it is but i will take him there. right now he is in one of the ok hospitals in boston. i wish he could go to a good one like Dana Farber Cancer Institute or Massachusetts General but am I able to decided whether or not he can leave the hospital he is at to go get care somewhere better?